Lessons from a caregiver for a rare neurodegenerative disorder

In this episode, we have Bruce Rosky, who is a patient advocate. Bruce shares his personal journey as a caregiver for his wife Jennifer, who was diagnosed with adult polyglucosan body disease (APBD), a rare neurodegenerative disorder. He talks about the challenges he faced as a caregiver, how he coped emotionally with the diagnosis, and how he found support and resources to help him in his role. Bruce also shares his insights on how to balance the practical and emotional aspects of caregiving and how to find ways to adapt to new challenges. Join us for this insightful and inspiring conversation.

Bruce Rosky is a patient advocate.

He shares his story and discusses his KevinMD article, "A couple’s journey with a rare neurodegenerative disorder."

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