Rare diseases can affect any family, regardless of their medical history. The common misconception that genetic diseases only run in families can lead to a false sense of security.
It's important to remember that anyone can be affected by these often devastating conditions. To ensure that future generations have access to life-saving therapies, it's crucial to maintain advocacy efforts.
The Orphan Drug Act, which provides support for the development of treatments for rare diseases, was passed thanks to advocacy efforts. And it's through continued advocacy that we can ensure its sustainability and continued support.
#RareDiseaseAdvocacy #HopeForTheAffected #AccessToCare #FightingForFamilies
James Geraghty is a health care executive.
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